The wait in pain process

It isn't often that I post about something in the mixing bowl, but today I am going to do just that.I left the gynecologist in frustration, tears, and feeling more anxious than I did before I went in. As many of you know from mass texts and such, there has been some talk about a mass on my ovaries. We have been trying to do everything to relieve my pain, and I just end up curled on the couch at the end of the day, wishing it would go away. After spending an hour in the gynecologists office, the only hopeful things I heard were that we were going to move on in the process and get a surgery consultation on its way. Other than that, we are almost stuck. The insurance will not pay for the surgery until I have two sonograms, and until I have reached my 21st birthday. Why until I reach my 21st birthday? My doctor believes it's due to the complicated risks associated with this type of surgery-there are many times a patient goes in for "exploratory" surgery and comes out with a full hysterectomy. I understand that I am just a baby, but it is overly frustrating that I have been handling my own medical affairs and necessities for 5 years now, and they are now beginning to question my ability to read my body. October 23rd is the scheduled surgery consult. It feels forever away, but in reality I know that it will be here before I know it. I have never had to wait so long in pain,and quite frankly have never reached this type of fear in my life. I can only expect the worst and hope for the best.

Thanks for being patient with me blogland x0x0

Growing older sucks

Ok. Everyone knows that when your 50 you are supposed to start receiving the "dreaded" colonoscopy. It's important for everyone to do to make sure that you stay as healthy as you can. However, quite frankly I am tired of the bad rep that they get. Obviously, if you read my blog, you know that I am younger. But with the joys of having CF and with a lot of my issues being digestive, I had the pleasure of receiving my 3rd or 4th one of these bad boys last week. So I thought this would be a great place to share my experience to show everybody-Hey,it's not so scary or awkward or embarrassing. Sure, you don't want to go around bragging about it, but in reality it's no big deal. So here's my week outline...

First. You get the pleasure of doing a liquid diet. For most people it is just the day before the procedure-but lucky me, I had to do a 2 day liquid diet. You get to indulge in Popsicles, broth, water, Gatorade, and clear gelatin.The only tricky part about this step is staying away from the colors red,orange, and purple. I learned the hard way that those are the majority colors of Popsicles.  However, I was able to find a citrus assortment box with yellows and greens so I was good to go.

Then you get this bad boy. My specific prep is called golytely. This will be the hardest part about the colonoscopy. It tastes absolutely awful-and depending on your doctor you will either drink it all in one sitting or you'll do a split bowel prep. I had the pleasure of doing split bowel prep, so I drank half Wednesday night and then had to get up early Thursday morning and drink the rest of it. It's hard to drink-but you gotta do it.

Procedure day is the easiest day-unless you're like me and have a procedure that's scheduled at 2 pm. That's right-I had to go allllll day without anything to eat or drink. I had the strangest cravings by the time I was put to sleep. But anyways, you'll go to the hospital, get an iv, they'll take you back to the procedure room, and then an about an hour-two hours you'll wake up. You have no memory of what happened, and my doctor's had even waited until I was asleep to lift my gown up.




See? Not so scary right. Certainly not scary when you think about that not getting colonoscopies could increase your chances of not finding cancer and other stuff right away. I was in a little pain afterwards, but that's also because I had the pleasure of receiving 15 biopsies due to my condition. I am pretty sure that is not routine. And at the end of the day, you go home to the comfort of your home with knowledge of how your insides are looking.

Oompa Loompa :(

I love candy.I love chocolate and ice-cream and cake.Basically, you could stick a straw in a bag of Domino sugar and I would suck it up and chase it with a nice glass of Mountain Dew.So it's no surprise that as I sat across from the dr today and she was describing this new "insulin resistance" that my body has, I was quite emotional. How can I be 20 years old and have diabetes already? Well, the truth is, it stems from the Cystic Fibrosis. I was expecting it to come eventually, as many people have warned me about it. So I get handed this packet and I have no where to start? So, here on my blog, I'll be able to document my progress,my pitfalls of this Diabetes journey. I have to follow the a-typical diabetic diet for two months and then get my blood insulin levels checked again. These blood insulin levels were at 125 and my fasting glucose was over 150 both times. So here's a new journey and Happy Birthday to me!

It's fall which means Pumpkin Lattes and Antibiotics!

Ok,so maybe I'm a Negative Nancy. But every fall-I end up getting severely sick.Maybe it's the change in weather, maybe it's the stress of school starting on top of everything else I have to do but it never fails. Today I woke up and I was fighting for air. Not exactly the best feeling in the World. I now get to spend 3 out of 7 days next week at the doctor's. At least there's a beautiful view of the leaves changing from my window.