MIA

Good Morning Blogland!

I bet most of you have noticed that I went MIA-life has gotten crazy lately and I just didn't want to be negative nancy everytime I wrote, so I decided not to write at all.

What has been up in the world of Rachel might you ask? I feel as if this is a mountain that I will never see the top of. I had a crazy few weeks with trying to finish school up, started working full-time, trying to squeeze in time with my infusions and still stay on top of my treatments.

I would be lying if I said I have been completely compliant with my treatments. Actually, too be quite honest, I am not even sure how often I am doing my nebs anymore. I know,I know.Time isn't an excuse. I really entered a  mild state of depression for a little while. My pre-screen for transplant came out with negative results, and I have just had a tough time finding a silver lining. You see, in my mind my life is all wrong. I will be 21 in October, and here I am still living at home, barely graduated with college with an associates, and going to the hospital every week. I thought for sure that this will be the rest of my life-sitting in front of a computer doing research and writing blogs for the rest of my life with no hope for a future.

But today,I am writing on a positive note. I have spent the past few weeks reflecting on my life and trying to decide on where I will go from here. I have spent some great few days with my boyfriend and realized I am the most loved girl in the world. I finally have found a chance to partially live on my own and live with my boyfriend and that makes me happier than anything in the world. And my work has finally offered me some awesome health insurance which will make my life a lot easier.

So at the end of the day,you just have to look at the little things and appreciate them.

Great Strides and the announcement of a lifetime

I know I know, I haven't posted in forever but I have been super busy! I participated in the Annapolis Great Strides Walk on June 2, and let me just say it was an amazing experience! My team raised over $2,000 and the whole Annapolis chapter did over $300,000! I am already overly excited for starting next years fundraising. At the walk, I also received amazing news from a lady from the Cystic Fibrosis Foundation. I am without a vest(an airway clearance device which is almost mandatory when fighting CF), due to financial reasons. What average 20 year old who goes to college full time can really afford a device that costs $20,000?? Anyways, the lady came up to me and basically said they're going to get me a vest. I have never been so happy in my life! All I could think about was, Wow this is why we need to get more help for the foundation. This foundation is a blessing to my life, and I'm sure I am not the only one. So leave my page with this thought, think about how you might be saving a life when asked to donate to CFF.