So it's almost been a week since my first zoladex shot.
The first day I was fine.
The actual place where they entered the shot was a little sore, but no symptoms.
Wednesday, I had my first hot flash.
I was pretty sure I was going to die.
KIDDING, but for real, it was terrible.
Thursday is when I started with real symptoms.
I can't even explain what's wrong-it's like my brain is telling me that I am in pain, but if you were to ask, I can't tell you what hurts.
I am also speaking jibberish. Not sure if this is related-but I cannot really process what is happening.
I also have NO appetite and plenty of nausea to go around.
I've been miserable.
I eat and then I get sick, or I don't eat, and then I get dehydrated and light headed from not eating so I still feel bad.
There's no win.
The worst part about it all is that it's not like when I went through my infusions and the first 3 days sucked, but then I get better. No, this one works the opposite in the fact that I will keep getting worse.
Oh well.
Other than that, nothing is really new.
I still need to schedule my gastric emptying study but I am having a difficult time with scheduling it.
Write again soon.
xxoxoxox
This is just a story of the average 21 year old.I'm a full-time student,a girlfriend, a daughter and a sister, and a case manager at a rehab. But on the inside, I'm fighting for air as I beat Cystic Fibrosis.
Showing posts with label CFF. Show all posts
Showing posts with label CFF. Show all posts
Saturday, April 19, 2014
Saturday, September 21, 2013
The battle
Today is a new day.
A day that is tougher than yesterday.
There are still many tears to be shed.
Many fears to be relieved.
Questions to be answered.
Thoughts that have no solution.
Can we take a moment to grief our situation?
Or must we continue with a smile on our face, pretending like we are not broken inside?
The truth is, we are broken.
Suffering with more internal pain than most people tend to realize.
But we make the calls, inform the family, and continue on because that's what is expected.
Not anymore.
It is my time.
I will scream,cry, panic.
I will not be ashamed when the tear falls from my eye.
But don't take that as me giving up.
For the battle is not over until I say it is.
A day that is tougher than yesterday.
There are still many tears to be shed.
Many fears to be relieved.
Questions to be answered.
Thoughts that have no solution.
Can we take a moment to grief our situation?
Or must we continue with a smile on our face, pretending like we are not broken inside?
The truth is, we are broken.
Suffering with more internal pain than most people tend to realize.
But we make the calls, inform the family, and continue on because that's what is expected.
Not anymore.
It is my time.
I will scream,cry, panic.
I will not be ashamed when the tear falls from my eye.
But don't take that as me giving up.
For the battle is not over until I say it is.
Tuesday, June 5, 2012
Great Strides and the announcement of a lifetime
I know I know, I haven't posted in forever but I have been super busy! I participated in the Annapolis Great Strides Walk on June 2, and let me just say it was an amazing experience! My team raised over $2,000 and the whole Annapolis chapter did over $300,000! I am already overly excited for starting next years fundraising. At the walk, I also received amazing news from a lady from the Cystic Fibrosis Foundation. I am without a vest(an airway clearance device which is almost mandatory when fighting CF), due to financial reasons. What average 20 year old who goes to college full time can really afford a device that costs $20,000?? Anyways, the lady came up to me and basically said they're going to get me a vest. I have never been so happy in my life! All I could think about was, Wow this is why we need to get more help for the foundation. This foundation is a blessing to my life, and I'm sure I am not the only one. So leave my page with this thought, think about how you might be saving a life when asked to donate to CFF.
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