First off, welcome to my blog!
My diagnosis story starts from when I was just 3 years old. I was born a completely healthy baby, but just a few days after I was born I was brought back to the hospital due to complications. For four years, I was a mystery baby. When I finally became a patient at Children's National Medical Center in Washington, DC, they found that my sweat-test was abnormal. From this point, I began treatments for Cystic Fibrosis. From there, I have continued treatments and now am followed by Johns Hopkins Hospital in their critical care department.
My diagnosis story begins to twist as I turned 20. I am followed by GI, and we found that I had several changes in bowels. From there, we conducted a colonoscopy and found that my colon was not only extremely inflamed, but my colon was lined with dysplysia and put me at a high risk of developing colon cancer. From there, I started weekly treatments of steroids and a mild dosage of chemotherapy drugs to try and kill whatever was growing in my colon. Unfortunately, in July 2013, I had to come off of the medications due to lowering kidney and liver functions.
It seems as if my life is ever-changing, which is why I developed this blog! This blog follows my daily life, including working, living,and dealing with the issues of being chronically ill.
Current Medications: Treatment Plans:
Trileptal Nebulizer treaments twice daily
Nexium Vest therapy twice daily
Zantac Exercise three times weekly
Amitiza Consume 3,000-4,000 calories daily
Zithromax and Cipro-on cycles
Pain meds as needed
Specialists I see:
Nutritionist in Internal Medicine