Friday, October 5, 2012

Oompa Loompa :(

I love candy.I love chocolate and ice-cream and cake.Basically, you could stick a straw in a bag of Domino sugar and I would suck it up and chase it with a nice glass of Mountain Dew.So it's no surprise that as I sat across from the dr today and she was describing this new "insulin resistance" that my body has, I was quite emotional. How can I be 20 years old and have diabetes already? Well, the truth is, it stems from the Cystic Fibrosis. I was expecting it to come eventually, as many people have warned me about it. So I get handed this packet and I have no where to start? So, here on my blog, I'll be able to document my progress,my pitfalls of this Diabetes journey. I have to follow the a-typical diabetic diet for two months and then get my blood insulin levels checked again. These blood insulin levels were at 125 and my fasting glucose was over 150 both times. So here's a new journey and Happy Birthday to me!

Tuesday, September 25, 2012

It's fall which means Pumpkin Lattes and Antibiotics!

Ok,so maybe I'm a Negative Nancy. But every fall-I end up getting severely sick.Maybe it's the change in weather, maybe it's the stress of school starting on top of everything else I have to do but it never fails. Today I woke up and I was fighting for air. Not exactly the best feeling in the World. I now get to spend 3 out of 7 days next week at the doctor's. At least there's a beautiful view of the leaves changing from my window.

Tuesday, June 5, 2012

Great Strides and the announcement of a lifetime

I know I know, I haven't posted in forever but I have been super busy! I participated in the Annapolis Great Strides Walk on June 2, and let me just say it was an amazing experience! My team raised over $2,000 and the whole Annapolis chapter did over $300,000! I am already overly excited for starting next years fundraising. At the walk, I also received amazing news from a lady from the Cystic Fibrosis Foundation. I am without a vest(an airway clearance device which is almost mandatory when fighting CF), due to financial reasons. What average 20 year old who goes to college full time can really afford a device that costs $20,000?? Anyways, the lady came up to me and basically said they're going to get me a vest. I have never been so happy in my life! All I could think about was, Wow this is why we need to get more help for the foundation. This foundation is a blessing to my life, and I'm sure I am not the only one. So leave my page with this thought, think about how you might be saving a life when asked to donate to CFF.

Wednesday, April 4, 2012

The beginning of my story

This is the start of my story,or as much as I want to recap anyways. My childhood was much more than average. Children's National Medical Center was in a major way, my home. It was the only place I went where I felt safe, I knew everyone, and that's where my friends were. At the time, I didn't know what was wrong with me, I just did what I was told. Nebulizer treatments, pulmonary function tests, pills and picclines, and that every 3 month clinic appointment consumed my life. I never understood why I had to take a suitcase full of clothes to my doctors office, or why at lunch at school I had to drink these funny shakes when everyone else ate normal food. I never realized that I was different until one specific day. While in the backseat of my mother's car one day, I went to scream in pain and realized I couldn't breathe. We rushed to a family members and I was yanked out of the car. I can remember laying out on the yard, nebs being forced in my face, the sounds of the sirens as firefighters and emts come to the rescue and when I woke up asking why is this happening?

Fast forward. 19 years old. Sitting in a pulmonary clinic. The doctor has finally confirmed that I have CF, a gene disorder with many different complications. I am now singled into a group of only 70,000 people that have this disease. There aren't many words to say when you hear the news. You wonder how your life is going to wonder how people will see you differently,how you will see yourself differently...but most importantly you ask yourself why is this happening to me?

The Purpose

It is impossible to know what everyone in this world goes through. Likewise, everyone has a moment in their life where they think the impossible has happened and their world is now crushed. Everyone at some point feels alone, scared, hopeless. But what would happen if just one person took the time to reach out to a stranger? To attempt a connection that neither of them knows could exist before that moment. This is my blog, this is my life. The things yet to come may touch you, scare you, gross you out, or maybe you won't even care at all. With this blog I hope to inspire, teach, inform, and connect with people on a deeper level by letting others see into my life. This is my story.