Friday, May 3, 2013

May 3rd-Day 3 of Awareness Month!

I skipped day two which was going to be diagnosis-forgive me,I'm sure I can hit that on another day.

Due to having a nutrionalist appointment this morning,I think that it's only fair to talk about nutrition and CF today.

For starters, there are two types of people with CF. We have pancreatic sufficient, and pancreatic insufficient. PI pateints rely on pancreatic enzymes to digest their food(talk about costly). Luckily, I am pancreatic sufficient, although as I go on, sometimes I wish I could just take a few pills and be done with it.

Something that is very important to do is to keep your weight up,or maintain a health weight. I normally do not have a major problem doing this, I can typically stay around 130 if I don't have an infection.

However, last year when I switched GI doctors- we found a lot more than we bargained for. I have a gluten intolerance.Now don't get me confused, I do not have a gluten allergy and I won't break out in hives or die if I have one glutened crumb-but my body doesn't have the capability to breakdown the gluten protein. So I started on a gluten-free diet(as much as I coulld) anyways and started to see minor progessions.

Well,my symptoms came back and they came back at full force-leading me to have some more testing done. I received my outcome today, I can no longer break down corn syrup(fructose), mannitol, sorbitol, lactose, or lactulose.

I normally stay to a high-fat diet, loaded with candies and sugars because that provides for better snacking. But now we realize that's doing more harm than good because my body isn't breaking down what I'm eating. It explains the gut-wrenching pains I get in my stomach, but sometimes you just want to eat like everyone else ya know?

As you can see, my body is slowly losing the ability to process anything. I am not sure about what will happen in the future, or if I keep gaining these issues, but as you can imagine my GI system is quite a wreck.

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