So it's almost been a week since my first zoladex shot.
The first day I was fine.
The actual place where they entered the shot was a little sore, but no symptoms.
Wednesday, I had my first hot flash.
I was pretty sure I was going to die.
KIDDING, but for real, it was terrible.
Thursday is when I started with real symptoms.
I can't even explain what's wrong-it's like my brain is telling me that I am in pain, but if you were to ask, I can't tell you what hurts.
I am also speaking jibberish. Not sure if this is related-but I cannot really process what is happening.
I also have NO appetite and plenty of nausea to go around.
I've been miserable.
I eat and then I get sick, or I don't eat, and then I get dehydrated and light headed from not eating so I still feel bad.
There's no win.
The worst part about it all is that it's not like when I went through my infusions and the first 3 days sucked, but then I get better. No, this one works the opposite in the fact that I will keep getting worse.
Oh well.
Other than that, nothing is really new.
I still need to schedule my gastric emptying study but I am having a difficult time with scheduling it.
Write again soon.
xxoxoxox
This is just a story of the average 21 year old.I'm a full-time student,a girlfriend, a daughter and a sister, and a case manager at a rehab. But on the inside, I'm fighting for air as I beat Cystic Fibrosis.
Showing posts with label cysticfibrosis. Show all posts
Showing posts with label cysticfibrosis. Show all posts
Saturday, April 19, 2014
Thursday, April 3, 2014
One week in the bag!
I am writing today on a very positive note.
I successfully made it one week without ANY gluten!
That wasn't without temptation.
I had to watch my boyfriend eat a delicious cake, my friends drink beer, and the temptations at work were unbelievable.
But after a week, I made it through.
The cravings are slowly going away and I am starting to feel like a normal human being again.
I don't expect to automatically feel better after a week, especially since I have had some major dairy slips, but I am feeling improvement.
I wake up feeling alert and go to bed never feeling overly tired.
I feel energized and active to the point where I was able to stop relying on caffeine.
So will I stick with it this time?
It's very much possible. The change may be worth giving up the nuggets and doughnuts.
On a side note-I had what was supposed to be my final ultrasound on Monday before I was to be given a surgery date. I've called the doctor's twice to receive the results and I am still waiting. It makes me nervous, but I know there is nothing else left for me to do except for wait.
That's all for now,
xxoxox
I successfully made it one week without ANY gluten!
That wasn't without temptation.
I had to watch my boyfriend eat a delicious cake, my friends drink beer, and the temptations at work were unbelievable.
But after a week, I made it through.
The cravings are slowly going away and I am starting to feel like a normal human being again.
I don't expect to automatically feel better after a week, especially since I have had some major dairy slips, but I am feeling improvement.
I wake up feeling alert and go to bed never feeling overly tired.
I feel energized and active to the point where I was able to stop relying on caffeine.
So will I stick with it this time?
It's very much possible. The change may be worth giving up the nuggets and doughnuts.
On a side note-I had what was supposed to be my final ultrasound on Monday before I was to be given a surgery date. I've called the doctor's twice to receive the results and I am still waiting. It makes me nervous, but I know there is nothing else left for me to do except for wait.
That's all for now,
xxoxox
Wednesday, March 26, 2014
Accepting the changes
I have to be honest for a quick minute.
I hate change.
I despise going to the doctor's and my medicines changing, or there's a new study, or they think I have just eliminate this, or add some of this to my diet, I will see some changes.
So as to no surprise, when I first heard that I needed to begin eating the FODMAP diet for my entirety(instead of just doing the essential diet, and then going through the challenge phase), I was more than a little disturbed.
How are you going to tell a recent 21 year old that everything that she envies in food-doughnuts, chicken nuggets, everything fried and covered in grease, is a no-no?
At first, I said too bad. I wasn't going to follow it. The doctor's could kiss my butt. I would try to do FODMAP-and I would fail by lunch-time, and then over indulge and candies and chocolates and everything fattening in the world.
But after my endoscopy, I learned some disheartening results. Because I chose not to listen, I have now developed celiac disease and the bacteria that was once growing in my stomach, is now all up in my esophagus and wrecking my body. So the doctor gave me the option. I could continue how I eat, and remain in pain and cause my body more harm, or I could get over my stubborn attitude and actually follow their advice and maybe gain some relief.
So now I sit here. Spending my time researching, studying, reaching out to fellow FODMAP foodies, and trying to learn more about this way of life and figure out how to follow it.
As of right now, I am on Day 2. Yesterday seem to go fairly well-I had to splurge and eat some cheese(ok-so I didn't have to, but I didn't prepare in advance so I had to eat what I have) but it seems to go fairly well.
This morning I actually woke up on my own, without my alarm, and with full alertness and energy which hasn't happened in I don't know how long.
Will I stick to it? I can only hope. I only have so many options left.
Know anyone on the fodmap or have tried it before? Let me know!
I will post a picture of what exactly the fodmap is so everyone can have a little glance!
I hate change.
I despise going to the doctor's and my medicines changing, or there's a new study, or they think I have just eliminate this, or add some of this to my diet, I will see some changes.
So as to no surprise, when I first heard that I needed to begin eating the FODMAP diet for my entirety(instead of just doing the essential diet, and then going through the challenge phase), I was more than a little disturbed.
How are you going to tell a recent 21 year old that everything that she envies in food-doughnuts, chicken nuggets, everything fried and covered in grease, is a no-no?
At first, I said too bad. I wasn't going to follow it. The doctor's could kiss my butt. I would try to do FODMAP-and I would fail by lunch-time, and then over indulge and candies and chocolates and everything fattening in the world.
But after my endoscopy, I learned some disheartening results. Because I chose not to listen, I have now developed celiac disease and the bacteria that was once growing in my stomach, is now all up in my esophagus and wrecking my body. So the doctor gave me the option. I could continue how I eat, and remain in pain and cause my body more harm, or I could get over my stubborn attitude and actually follow their advice and maybe gain some relief.
So now I sit here. Spending my time researching, studying, reaching out to fellow FODMAP foodies, and trying to learn more about this way of life and figure out how to follow it.
As of right now, I am on Day 2. Yesterday seem to go fairly well-I had to splurge and eat some cheese(ok-so I didn't have to, but I didn't prepare in advance so I had to eat what I have) but it seems to go fairly well.
This morning I actually woke up on my own, without my alarm, and with full alertness and energy which hasn't happened in I don't know how long.
Will I stick to it? I can only hope. I only have so many options left.
Know anyone on the fodmap or have tried it before? Let me know!
I will post a picture of what exactly the fodmap is so everyone can have a little glance!
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