I spent all last week in bed.
On Tuesday/Wednesday we suspect that I had a seizure, with several small ones following.
When I finally went to the hospital on Friday, they diagnosed me with low magnesium but are sending me to get some EEG's done on my head.
Since I started the mag supplement, I must say I am feeling much better! I still have a migraine that won't go away even with fioricet, but I am regaining energy and almost completely back to normal.
With feeling better, I am ready to get in the Christmas spirit.
Over the next week, all of the presents I have ordered should be arriving and then my favorite part will commence-wrapping! I just love the look of wrapped presents under the tree.
I've searched the internet high and low to find a simple, gluten free gingerbread man recipe-which I have found and cannot wait to try it out.
I have borrowed Christmas movies, and hopefully, I will find some others on sale to purchase.I just love the movie Elf.
My schedule is all laid out showing who we are to see and when-I just love spending time with my family.
Most people get so stressed during this time of year-just make a plan, turn on some christmas tunes, drink some egg nog and relax!
xoxox
This is just a story of the average 21 year old.I'm a full-time student,a girlfriend, a daughter and a sister, and a case manager at a rehab. But on the inside, I'm fighting for air as I beat Cystic Fibrosis.
Wednesday, December 11, 2013
Friday, November 29, 2013
Finding a home
Yesterday, I hit a roadblock.
Actually, the road block began Wednesday night in the midst of our travels to my father's house.
At 21 years old, I have finally come to the conclusion that my family will never be "normal".
Every holiday I must choose who I want to spend my time with.
This year, my family was spread out not only over one state, but two.
I was finding it hard to be thankful when I was stuck in this sticky issue.
Where do I go? Who do I choose to be with?
Then I remembered.
I'm breathing.
I'm not in the hospital fighting for my life at this moment.
Why does it matter so much who I am with?
What I am doing is most important.
Celebrating life, love, and happiness.
The tears then started to clear up, and I was able to enjoy my holiday with some of my closest family members.
How was your thanksgiving?
Saturday, November 23, 2013
A week full of accomplishments!
Well, lets see here-I am a little excited today.
This week was the first week in months that I had more good days than bad.
Unfortunately, so many good days put me on the couch Thursday and Friday with a fever and unbelievable pain.
But back to the good days!
1-I got up around 8 am(some days earlier) everyday except for Friday. That is an easy way to add 4 hours to your day.
2-I was able to make it work on Tuesday. I worked for 6 hours and enjoyed every minute of it. To top it off, I even made it to my boring work meeting on Wednesday. I wasn't as much excited for the meeting, but the fact that I was able to make it made me happy.
3-I went to GI on Wednesday and made a lot of progress. All of my meds are being swapped around and were going to consider doing the surgery for my esophagus in January.
4-All of my appointments are now lined up and I am getting super excited for Disney!
What did you do this week?
This week was the first week in months that I had more good days than bad.
Unfortunately, so many good days put me on the couch Thursday and Friday with a fever and unbelievable pain.
But back to the good days!
1-I got up around 8 am(some days earlier) everyday except for Friday. That is an easy way to add 4 hours to your day.
2-I was able to make it work on Tuesday. I worked for 6 hours and enjoyed every minute of it. To top it off, I even made it to my boring work meeting on Wednesday. I wasn't as much excited for the meeting, but the fact that I was able to make it made me happy.
3-I went to GI on Wednesday and made a lot of progress. All of my meds are being swapped around and were going to consider doing the surgery for my esophagus in January.
4-All of my appointments are now lined up and I am getting super excited for Disney!
What did you do this week?
Monday, November 4, 2013
The month of giving thanks!
I love Christmas.
I love everything that has to do with pumpkins, apples, gingerbreads, orange and red, and well you get the picture.
To be on bedrest while my favorite season is passing by is so painful-luckily I have a set of beautiful french doors that allow plenty of light and fall colors in.
I did make it to an apple orchard for the first time ever.It was so much fun to be outside and enjoying the fresh air. We picked apples, went on a hayride, and best of all I was able to spend it with two of my very best friends and my boyfriend.
So obviously, there are things that I am thankful for.
I can run a list a mile long: my life, my family, my friends, my boyfriend, my job, having the ability to take care of myself, etc but there is one thing that has stuck in my mind.
Determination.
Don't get me wrong-I think you need to give credit where credit is due and I try not to take advantage of things I have been gifted, but if I didn't have determination where would I be really?
I would be sickly because I wouldn't be determined to fight.
I would be lonely because I wouldn't be determined to put the effort back into relationships.
I would be swamped with medical bills because I would've given up on work a long time ago.
I would feel worthless because I wouldn't do anything to make myself happy.
Determination is what gets me through each and every other day, so for that I am forever grateful.
What are you thankful for?
Sunday, November 3, 2013
Learning to Run
To follow my last post, I have decided that taking up another exercise habit is a must.
I love spinning class.
I hate paying $40 a month for a worthless gym otherwise.
We moved to a lovely community in August and I think it would be the perfect place to start walking, and learning to run.
I just feel as if I am on a search for something.
Anything to make me feel complete or worthy again.
I used to love running until my lungs started to suck again.
I was down to 10 minute miles-I was about dead afterwards, but I was doing them.
I want to do that again.
I want to have the power over my own body again.
I love spinning class.
I hate paying $40 a month for a worthless gym otherwise.
We moved to a lovely community in August and I think it would be the perfect place to start walking, and learning to run.
I just feel as if I am on a search for something.
Anything to make me feel complete or worthy again.
I used to love running until my lungs started to suck again.
I was down to 10 minute miles-I was about dead afterwards, but I was doing them.
I want to do that again.
I want to have the power over my own body again.
Saturday, November 2, 2013
Forgetting the Basics
Sometimes, especially when I am down with an illness, I forget to keep up with the basics. Making sure when I eat, I eat balanced meals(or at least healthy foods), exercising, sleep patterns, all seem to go out the window. It normally isn't a big deal-I fall off of the track for 3-4 days and hop back on.But this time, it's been 4 months. I have forgotten what it is like to function like a normal person. I have neglected my body and honestly, could be causing it more harm than good. I believe that I have decided to join the gym again-it is the only way I can hold myself accountable. If I am paying for something, I intend to use it-even if it just to attend a yoga class or spinning.
There are just so many things you can do for your health, I don't know why I have never tried before. There are so many things to look into-juicing, herbal remedies, etc. I hope that this is a start of a new journey :)
There are just so many things you can do for your health, I don't know why I have never tried before. There are so many things to look into-juicing, herbal remedies, etc. I hope that this is a start of a new journey :)
Wednesday, October 23, 2013
The mass that wouldn't go away
To update you all on my recently scary adventures:
I went to the surgeon today to talk about the mass that has decided to make itself at home on my right ovary. I went into the appointment terrified of what the doctor might have to say. Was I going to need a full hysterectomy? What are the chances of it being cancer? There were so many questions that I have had for so long that I was begging for answers. Luckily, he was just as prepared as I was to talk about the findings. There is no need for a hysterectomy at this time. They are running the screens to see if what I have contains any pre-cancerous or cancerous cells. But I always learned a new word today...
I went to the surgeon today to talk about the mass that has decided to make itself at home on my right ovary. I went into the appointment terrified of what the doctor might have to say. Was I going to need a full hysterectomy? What are the chances of it being cancer? There were so many questions that I have had for so long that I was begging for answers. Luckily, he was just as prepared as I was to talk about the findings. There is no need for a hysterectomy at this time. They are running the screens to see if what I have contains any pre-cancerous or cancerous cells. But I always learned a new word today...
ENDOMETRIOSIS
What is this you ask? I still have not fully grasped what tags along with this word. All I am completely sure of, is that I have this, and that it is not going away.
A part of me was relieved, I for now, do not have cancer. But I am also in a way disappointed. I was hoping to just have this mass removed and to go on with my daily life. However, the doctor has made it clear that daily life isn't going to be quite the same anymore. I will be starting some new medicines, as well as continue to a genetics doctor to see if I carry the gene to possibly have Ovarian Cancer. So here I am yet again, fighting another battle.
XoXo
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